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Blog: Be an Informed Breast Cancer Patient

Advice during Breast Cancer Awareness Month for those who are newly diagnosed—be your own best advocate!

With all the hype this month about breast cancer awareness, I hope that it is also serving as a reminder to all you ladies to get your mammograms. Sadly, that means that some will be diagnosed with breast cancer. Today's blog won't apply to everyone, but I'm trying to write a variety, and this will apply to those who are newly diagnosed.

Sadly, in the past couple of weeks I've had two more friends who were diagnosed with breast cancer—a sisterhood I would rather not see growing. Wow, sometimes you wonder if there is there something in the drinking water! One friend is a former co-worker and we reminisced about how many of our former co-workers have since been diagnosed with some sort of cancer, most often breast cancer. Although, I guess if you looked at it statistically, we're about right since one in eight women today get breast cancer in their lifetime and breast cancer is the most common type of cancer among women. Did you know that this statistic is up from one in 22 in the 1940s?

After hearing of their new diagnoses, I had to think about how I would advise them to face this new challenge.

Get all the information you can. Some women just know that their doctor said they have cancer and now they have to take a blue pill. Get specifics. Get copies of all your scans and tests. Jot down your questions and bring them with you to your doctor's appointments. If you don't understand, ask again.  

Take a spouse or friend along with you to be your second set of ears—they may pick up information that you miss. Get a second opinion. Investigate the reputation of the doctors you are sent to and ask around if there are specific oncologists, surgeons, etc., that friends and family would personally recommend. If you have friends who are nurses, they can be a great source of information like this.

You may also want to do some online research and educate yourself so that you will better understand what the doctors tell you and also so you can ask informed questions. However, this isn't for everyone but I like to do this so that I am well-informed. As awesome as my doctors are, there are times when I feel they are not telling me everything, just to protect me, which isn't entirely a bad thing, but personally I want to know.

I do have to caution you, however—the internet can be a scary place. Not all of the information out there is accurate and not all of it will pertain to your specific case. There have been several times when I have scared the heck out of myself and my family with information I have found online. Make sure you only research on reliable websites, then ask your doctor about what you've read. A patient advocate once told me to only seek medical info on websites that end in ".edu," ".org" or ".gov."

You will need to be your own best advocate on this journey. There will be times when you will have to make choices about your treatment and when you may have to do battle with your insurance about what is best for you. Educate yourself, surround yourself with the best experts, as well as friends and family who can assist you with these matters.  Then, you can head into battle well-equipped with knowledge! Fight on, sisters!

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Nancy Wride (Editor) May 23, 2013 at 01:06 pm
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Panglonymous May 16, 2013 at 02:38 pm
If the medium is the message, what is Patch 2 saying?Read More http://missionviejo.patch.com/groups/opinion/p/this-boards-for-you-whiners
Panglonymous May 16, 2013 at 01:22 pm
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Nancy Wride (Editor) May 15, 2013 at 12:43 pm
Nice. Yesterday's Playlist was led by 'Livin' on a Prayer' :D
Panglonymous May 15, 2013 at 12:25 pm
Good morning, good morning ... good! http://www.youtube.com/watch?v=lzhSbBftWtk
Mike Ruehle May 15, 2013 at 03:04 pm
Long Beach Police Commander Jay Johnson is now the 3-year chief of the Newport Beach departmentRead More described by Orange County media as, "Police Department Management Is a Cesspool of Adultery, Lies & Retaliation Against Honest Officers." http://blogs.ocweekly.com/navelgazing/2012/07/newport_beach_police_departmen.php
Nancy Wride (Editor) May 15, 2013 at 09:18 am
Thanks, John.
John B. Greet May 12, 2013 at 10:00 am
Perhaps Ruehle should learn just a little more about all the things the Auditor's Office *does* do,Read More before whining and complaining about all of the things it doesn't. http://www.cityauditorlauradoud.com/office-of-the-auditor.shtml Beyond routinely identifying many areas of waste, fraud, and abuse in City government, the Auditor's office conducts a great deal of non audit-related services each year. Ruehle's comments seem to connote a belief that City Auditor Doud is somehow responsible for investigating and reporting on every bad decision the Council makes or every instance of questionable affiliation found throughout City government. She is not and even if she were, Long Beach taxpayers do not provide her with sufficient resources to do so. Despite that Ms. Doud is, herself, a citywide elected official, and despite her office's consistently excellent work-product, she can only fact-find and report her findings. Beyond her own office, she has no authority to mandate changes in the way other City officials conduct the people's business. Since her initial election in 2006, Ms. Doud's office has uncovered -and reported upon- millions and millions of dollars worth of fraud, waste, and abuse in City government. That's not sufficient for Ruehle who, despite all his complaints, will never consider running for that office himself and showing us all how much better *he* could do.
John B. Greet May 12, 2013 at 09:39 am
"...this article is saying that the fact that the city of Long Beach extorts millions ofRead More dollars from its residents in the form of RIDICULOUS parking tickets and charges outrageous fines for them is to be applauded?" No. There is actually nothing in this article that says that but please enjoy these lovely parting gifts.
Mike Ruehle May 12, 2013 at 06:56 am
What has City Auditor Laura Doud done since her re-election other than support anything wanted byRead More Foster & Delong. Maybe people should ask: 1. Why didn't Doud audit the city's transaction where city owned valuable port property was exchanged for swamp land? There certainly was enough controversy about the value of each asset. Wasn't it her job as the taxpayer's representative to look into it? 2. Why didn't Doud audit the amount of taxpayer's money used to support the 2nd & PCH project and the Home Depot project before that. The city was supposed to be compensated by the Developers for ALL of their costs, including meeting costs. However, that is NOT what happened. Millions of taxpayer's dollars where gifted to certain politically connected developers. 3. Why hasn't Doud audited the $1 dollar per year no-bid contracts of valuable city taxpayer owned ocean front property to the Long Beach Yacht Club, Alamitos Bay Yacht Club and other exclusive members only clubs for the wealthy and politically connected do determine what the value of an alternative use might be? 4. Why hasn't Doud audited the exclusive, no-bid, for-profit lease of city owned waterfront property to Steve Conley's and John Hancock's BANCAP company that has made those two men tremendously wealthy at the expense of Long Beach taxpayers? Doud started out with a bang when first elected. Since then, she has been a crony for anything Foster and DeLong related.